debra of America

ABOUT DebRA: Dystrophic Epidermolysis Bullosa Research Association of America (DebRA) is the only national non-profit organization dedicated to funding research and supportive services for those affected with Epidermolysis Bullosa (EB). EB is a devastating and sometimes fatal rare genetic condition that affects 1 out of every 50,000 live births. Patients with EB have skin so fragile that any rubbing, friction or slight trauma can cause severe blistering and sores- inside and outside their bodies. There is NO cure and the only treatment is wound care, bandaging and pain management.

DebRA's mission is to alleviate the inherent daily stress of living with "the worst disease you've never heard of."

Please visit www.debra.org and Like us on Facebook: www.facebook.com/debraofamerica.

Upcoming (0)

Sorry, there are no upcoming events

Past (2)

The 2nd Annual Mats Wilander Foundation Tennis Pro-Am benefiting debra of America and Epidermolysis Bullosa primary image

The 2nd Annual Mats Wilander Foundation Tennis Pro-Am benefiting debra of America and Epidermolysis Bullosa

Wed, Aug 27 • 8:00 AM

Check ticket price on event

The 2nd Annual Mats Wilander Foundation Tennis Pro-Am benefiting debra of America and Epidermolysis Bullosa primary image

The 2nd Annual Mats Wilander Foundation Tennis Pro-Am benefiting debra of America and Epidermolysis Bullosa

Wed, Aug 27 • 8:00 AM

Check ticket price on event

ABOUT DebRA: Dystrophic Epidermolysis Bullosa Research Association of America (DebRA) is the only national non-profit organization dedicated to funding research and supportive services for those affected with Epidermolysis Bullosa (EB). EB is a devastating and sometimes fatal rare genetic condition that affects 1 out of every 50,000 live births. Patients with EB have skin so fragile that any rubbing, friction or slight trauma can cause severe blistering and sores- inside and outside their bodies. There is NO cure and the only treatment is wound care, bandaging and pain management.

DebRA's mission is to alleviate the inherent daily stress of living with "the worst disease you've never heard of."

Please visit www.debra.org and Like us on Facebook: www.facebook.com/debraofamerica.

Events

Sorry, there are no upcoming events
The 2nd Annual Mats Wilander Foundation Tennis Pro-Am benefiting debra of America and Epidermolysis Bullosa primary image

The 2nd Annual Mats Wilander Foundation Tennis Pro-Am benefiting debra of America and Epidermolysis Bullosa

Wed, Aug 27 • 8:00 AM

Check ticket price on event

The 2nd Annual Mats Wilander Foundation Tennis Pro-Am benefiting debra of America and Epidermolysis Bullosa primary image

The 2nd Annual Mats Wilander Foundation Tennis Pro-Am benefiting debra of America and Epidermolysis Bullosa

Wed, Aug 27 • 8:00 AM

Check ticket price on event